Families Speak Out...

Here in Mississauga we run our monthly support group meeting on the third Monday of the month; last night four ladies joined me for our July meeting. A common topic that seems to come up during discussions month to month is the system or lack thereof. Families have first hand experience in dealing with the shortfalls of our Mental Health System and are often left picking up the slack. They really do provide all of the same community based services with little to no training, financial support, or respite care.

We try to stay away from "system venting" as much as possible in our support groups as it often is not constructive, but last night I offered the group 6 minutes of 'system venting' which was enthusiastically received. The catch to our system venting period was that the families had to end their venting with constructive suggestions to improve our Mental Health system here in Ontario. Leave it up to the experts to identify what is missing; here were some of the suggestions...

· Community-based Mental Health Emergency rooms-people can receive the respect and dignity they deserve while they are unwell without having to be escorted in front of others by police, or having to sit in an emergency room with other people presenting physical injuries, etc; a place where individuals do not have to be locked into rooms with little to no support. A place where consumers and families can come in and talk to crisis workers; a place where people can talk face to face and others can listen.

· Follow up, follow up, follow up. Families want to see a system that has a follow up process. When you need to see a specialist someone makes that appointment for you as soon as possible and then they call to remind you of your appointment. Families do not go out and try to find their own Cardiologist, Urologists, Oncologists, etc. the system finds it for them. Let's have an effective system that supports families in finding mental health support.

· Family-centered care-this means including the family in the process, listening to what the family has to say, taking their observations into account. "Families don't just go out and Form their loved one for fun" Family centered care within ER settings as well.

· Family education-many families figured this system out on their own; "help us help our loved ones" Not much to ask for.

So the 6 minutes of 'system venting' turned into 15 but what a great way to spend 15 minutes. Families really do know what is needed, they know because they are the ones that are actually working within the system.

Families are looking for and needing changes. They will continue to wait.